When They Don't Tell You Everything

After my last post, I was thinking my cancer was at bay.  This week was my scheduled Oncologist visit, Falsodex and Zometa treatments.  When I told the doctor what had been relayed to me from my GYN, he then asked what radiation treatments and chemotherapy was recommended.  I replied, none.  I could see from his head shakes and demeanor that something was wrong.

One thing my GYN didn't relay was the blood test taken at the Oncologist's office.  She didn't receive the results when we were discussing my MRI results.  Now at the Oncologist office he told me the normal range for ovaries is between 0-35.  My blood test results were a scary high number, too high to share.  My cancer is in my ovary.


Regan, IV Nurse

He began to tell me about chemotherapy.  It would be 8 treatments every three weeks and can't remember the name of medication.  I will lose my hair and become nauseous.  I have been going to my IV infusion treatments with Zometa monthly.  Now these visits will become weekly with blood tests, treatments and doctor appointments.  He also scheduled a PET scan so we would have a base line prior to treatment.  I will have those results next week.

Since I have trouble with my IV, Regan my IV nurse, talked about getting a IV port installed.  It is all so real and unwanted, a place I was hoping not to be.  I am so tired of being poked in my hands because of my deep veins.  I resign myself to having one installed.  I also found out that I will be on Zometa for the rest of my life instead of the 12 treatments mentioned at my first appointments.  Regan said it was like taking your vitamins for your bones.  They could only get approval for 12 months of treatments at a time with health insurance.  Oh boy!

At this point I am scared that I may be at the point of no return which is why they recommended no ovarian surgery.  That question will be asked at my next appointment.  I am thankful that I switched from an HMO to a PPO healthcare plan this year because it would take weeks before getting any testing or chemotherapy treatment approved.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Deciphering The Results

It has been a while since my last post.  Emotionally, I had a lot going on, MRI's, doctor appointments, my birthday, holiday's and then the wait for these results.  Knowing that the results would be in 2-3 business days, I was anxious.  What would happen now.  Surgery, biopsies, hospital stays and more downtime had me contemplating ahead of what the doctor would report.

Mid-week after my MRI, my GYN doctor called, it was unsettling.  I have never had a doctor call usually the doctor's assistant would be relaying the results, or so I thought.  The good news is the doctor suggested there be no surgery for removal of my ovaries.  The MRI showed a few lymph nodes by my ovaries had been metastasized from my breast.  She had consulted with an ovarian oncologist and they concurred the results.

My father had prostate cancer, then spots showed on his liver and bout six months later had colon cancer.  They removed a portion of his colon and even though he went through chemo treatments as well, he didn't have the quality of life he wanted.  He died 10 days before his 65th birthday.  The cancer had become more aggressive after his first round of treatments.

In hindsight, I have heard others who have had cancer.  Doesn't matter what type, cancer when not caught in its early stages can travel to other areas.  I know that my breast cancer is in stage IV (in my bones) and now in other lymph nodes.  I am optimistic with no surgeries, my time here will last longer than if I had surgeries.  Right now it has not gone into major organs which is a great thing.

So now I enjoy going to my community pool for relaxation, exercising in the water for resistance training in a safe environment.  Have to change my mindset, destress.  I have my monthly visit with the oncologist tomorrow along with my Falsodex and Zometa treatments.  Hydrating today so my IV infusion is not difficult tomorrow.  So for about 3-4 days I will be recouping from my treatments.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Anniversary ... Cancer's Constant Timeline

My anniversary of being diagnosed with breast cancer was yesterday.  Also my birthday, funny how that works out.  This month has been a challenge for me with all my doctor appointments, impending test results.  Since my last post I had experienced a lot of emotions.

As always, I miss my mom, her words, her comfort.  After learning from my GYN doctor that I may have ovarian cancer too, little things set me to tears.  Damn those commercials from TV, sometimes I have to change the channel for 30 seconds.  Oh boy!  I had an MRI scheduled for the 20th at a local hospital.  I received a message of instructions the night before.  No jewelry worn, no metals on clothing and no food or drink 4 hours before test.  The appointment was at 3pm.  When I arrived and taken back to the MRI area I was advised that they would need a blood sample and an IV inserted for the contrast.  None of this had been relayed when making appointment or on the message the night before. 

I have a hard time giving blood or getting IV's started.  My veins are deep and I really didn't hydrate well based on the message the day before.  The technician said they had 22 gauge needles, nothing smaller.  They found one vein possible for insertion, but had trouble once inserted to get blood in the needle, my veins jump.  My hands were the next possible area and I protested about the size of their needles.  Couldn't believe the didn't carry any smaller sizes for a hospital outpatient center.   I am tired of being poked.  It definitely happens monthly with my Zometa treatments.  The technician said I could reschedule the appointment, so I did.

The following Monday I rescheduled my MRI to another hospital in the area for that Friday (27th) in the morning.  I was not going to fast for 4 hours mid day, it would be hard not to keep hydrated.  Funny thing is I hydrated very well this past Thursday and was prepared based on the scenario from the other hospital.  Once there the technician thought we may need the IV sonogram insertion because of my veins, they at least had 23 gauge needles there.  No mention of a blood test before the MRI (from the previous hospital), they brought me into the MRI room.  First series of pictures were without contrast, then the contrast would be inserted via IV for second set of pictures. 

Man that MRI machine is loud.  I had selected classic rock for music and the first song was Hotel California by the Eagles.  After a few songs they moved me out of the MRI to insert the IV.  I was confident that I had hydrated myself and the technician did it in one try with a butterfly needle for the contrast.  All in all it took about an hour to complete.  Now to wait for the results in 1-2 business days.

In between these MRI appointments I had my monthly IV infusion of Zometa, then I met with a breast surgeon, overdid it with errands.  By the end of that week I was in a lot of back pain and needed to rest vertically for awhile.  It has been a challenge of ups and down, stress from time to time but I made it through. 

One year as a breast cancer survivor ... keep me in your prayers ... fingers crossed for good news this week.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

When The Doctor Comes In After A Test

Today I was scheduled for a sonogram my GYN doctor recommended to rule out any other problems with my uterous from my last visit.  My pap smear and polyp pathology came back benign or negative.  A relief for sure.  As I was waiting all ages of women were there to have a sonogram.  I felt like I was in a club for women's issues, there to eliminate any doubts perhaps each of us was feeling.

The technician called me in, asked me to void my bladder and undress for the sonogram.  She was a nice lady and proceeded to start the sonogram.  First up vaginal pictures.  At this time I asked her if I was to see the doctor after and she replied she usually sends them home unless there was something the doctor needed to see then and there.  Ok, no problem, that was fine.  I could wait to hear the results later.

The technician spent about 10 minutes looking and printing out pictures for the doctor.  She had a little trouble looking at one of my ovaries and needed to perform a sonogram through the stomach.  Once she finished she explained she was having trouble seeing the ovary and wanted the doctor to review the pictures while I was still here.  So I sat on the table that felt like forever before the technician and doctor came back in. 

My uterine lining was a little thick and the doctor recommended a D&C.  But apparently one of my ovaries had a cyst or fibroid on it.  Performing the sonogram through the stomach while the doctor was there and then confirming through vaginally with pictures.  My doctor started recommending a ovarian oncologist.  This alarmed me, but the doctor assured me that she could perform the ovary removal.  The recommendation came because if it was cancer the right doctor could do everything possible then and there. 

I understood what she was saying but it seems to me doctors, doctors, doctors and more doctors.  We discussed bloodwork and a ovary MRI to determine whether an oncologist specialist was necessary.  I now have something else to worry about and next week will be meeting with my oncologist for Zometa and Falsodex treatments.  Oh boy!

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

When They Want To Change Your Pain Medication ...

At my last Oncologist appointment, my doctor discussed going on a study with marijuana extract.  I am all for a natural pain medication and will be thrilled when Florida becomes the next state to accept medical marijuana.  As a young person and adult I did use marijuana recreationally so being familiar with the side effects is a non compete. 

For the past year, I have been on a IR (immediate release) Morphine pill for pain.  I didn't have all of the side effects, but constipation is constant.  In order to be on the study, my doctor changed my Morphine IR to an Morphine ER (extended release) pill.  My prescriptions came in the mail on Friday and I had my first ER pill that night.  I remember feeling better with very little pain breaking through.  It was a good feeling.

On my morning rise Saturday, I took my Tamoxifen then added the ER pill.  It was on an empty stomach.  Within hours I was experiencing nausea and dizziness.  Yes, I was experiencing a lot of symptoms.  The prescription document also recommended taking the pills with food.  When my first pill was consumed I didn't experience any side effects.  Now I realize the ice cream I had eaten before taking my night time medication helped.

Not a breakfast person, I generally have something after a few hours of waking.  I made lunch and it didn't make me feel any better.  Then drinking some water and within 20 minutes I began to feel like vomiting.  Oh my goodness ... this is not where I wanted to be.  When I got up to go to the bathroom the sensation started to subside. 

I needed to relax.  I hadn't slept well the night before either.  After taking a 2 hour nap I was feeling better but could still feel the sensations of the morning dose.  Giving this a chance because I did feel a difference in pain levels.  It was an improvement.  I am required to manage the pain level before being placed on a marijuana extract regime.  Again, looking forward to when Florida makes marijuana legal. 

Since the Morphine ER requires 1 pill every 12 hours, by Sunday morning I was still feeling the uncomfortable side effects.  So I wanted to see how long the sensations would last.  By about 4pm on Sunday, the sensations or side effects lessened to a tolerable level.  Sunday night I had dinner and took the Morphine ER for the night.  I didn't have the experience felt on Saturday and today can still feel the medication, but at an tolerable level.

My Oncologist visit is next week for my monthly Zometa and Falsodex treatment.  I don't know if I can handle the Morphine ER on a long term basis.  Is it worth it to be on Morphine ER to be involved in the study?  The next week will be an adjustment period.  Say a prayer for me ...

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Doctors, Doctors, Doctors!

I recently changed my HMO to a PPO to have more control over my medical problems.  After visiting my new primary care doctor, she recommended going to my GYN doctor.  Because when you have one women's disease, it could lead to more, she stated.  What a way to make you more nervous than you already are.

I was able to get a GYN appointment with my doctor right away.  Of course it was emotional.  I cried when I told her I should have listened to her.  How I was stubborn and now have to live with the results.  She was sweet when we spoke about my mom passing.  It was touching to have a doctor care in such a manner.  After explaining my concerns for my visit she prepared tests for the pelvic exam, first a pap smear.

It is never a comfortable exam being propped up in certain manner to see the cervix, but once she was viewing my insides she said I had a polyp.  A pretty big one.  Uh oh, now I'm scared about another health issue.  The doctor then removed the polyp, showing me before placing in the cup for pathology.  Yup, it was a big polyp, about 2 inches in length.  The doctor also performed a test by inserting something through the cervix into the uterous.   Not a pleasant experience, but lasted 20 seconds.  She explained with these tests and a sonogram (scheduled for next week), will help determine if there is anything to be addressed.

Today's technology has certainly improved over the years.  Before entering the doctor's office, I kept thinking I would be subjected to a colposcopy.  These are not pleasant, bee sting my a$$.  If you've had one, then you know what I mean.  The good news is the polyp pathology came back benign. 

My GYN doctor also gave me a breast surgeon recommendation.  It's time to have the lump removed, it has been a year.  The Tamoxifen has put me into menopause and hasn't reduced the lump.  Which now concerns me. 

I'm thinking about having a double mastectomy.  It's about the possibility of cancer spreading to the second breast in the future.  Why go through breast cancer surgery twice.  Also for me the idea of having a deformed breast and then having to get specialty bras or bathing suits is unappealing.  It's about being comfortable.  I've had DDD breasts, wearing underwire bras for most of my adult life.  Plus I have gotten used to not wearing one.  My boobs are no longer perky, swinging left and right like they just don't care. 

Besides having scars after a double mastectomy, I would have a tattoo to cover what once was.  A breast cancer survivor representation.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Massage Therapy Is Not A Luxury ...

An Alternative Medicine, massage therapy is beneficial to anyone looking for relaxation, reduction from stress, headaches or any other ailments.  Enjoyed by the elderly to babies.  It is now considered a luxury by some individuals since health insurance companies no longer cover it.  I see it as a necessity in your overall wellness.  When your budget allows for it, I say go for it.

Message therapy has always comforted me in the past and relieves the tension or stress from my day to day activities.  It helps drain toxins from your lymph nodes, aids the digestive tract, promotes better blood flow and so much more.  I don't see massage therapy as a sexual release but an emotional release.  Tension or stress comes in all our lives everyday.  Each of us has different things affecting our emotions and our bodies.

A licensed professional will take your medical information and listen to your current stress levels.  Massage therapists will apply pressure to your comfort level providing you the best muscle relief and relaxation.  Speak up if the pressure is too deep, it is all about relaxation and comfort.  Drink plenty of water before and after to help remove the toxins.

Never had a massage before, ask for a gift certificate on your next occasion to your local massage center or a referred massage therapist.  Some massage schools have a discounted program for students to apply their skills, but it will not be the same as a licensed professional.  Keep this in mind when using schools. 

Save your receipts and use them for out of pocket medical expenses or health savings account.  My motto is try things once and if you like it incorporate it into your life.  You will be glad you did.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical or accountant professional and any information contained here is an opinion.  Seek advice from a professional. 

Hydration Is Key ...

Water has no calories, it is colorless and is essential for maintaining a healthy body environment.  Yet most people do not have the recommended eight glasses of per day.  A natural resource, individuals will choose soda, energy drinks and others over water.

For me, I was a soda drinker.  I loved Coca-Cola!  As a young person it would help any hangover, the sugary caramel flavor.  Yyyuuummmmm!  Coca-Cola always satisfied my thirst cravings, but it wasn't until later in life did I realize the effects it was causing.

Drinking 4-6 cans a day, I had sugar rushes as well as crashes.  It was hard to give up.  Gradually I reduced the amount of soda and incorporate water into my diet.  After a year of not drinking soda, I can say when I indulge, it no longer has that pleasure factor.   Soda doesn't taste the same either, it now has an aftertaste.

Regan putting in my IV.
 

As mentioned, water is essential to a health body.  It maintains your organs, bloodflow, hydrates the body, aids the digestive system, removes toxins through the kidneys and sweat through the skin.  For me I need a steady drink of water throughout the day.  When I start to feel a headache coming on, I have water and within minutes feel better.  It is your system signaling you are dehydrated.

Each month I have Zometa treatments to help strengthen my bones via IV.  Requiring tests to ensure my kidneys are running properly and other indicators, my veins are difficult for blood draws and IV's.  Drinking the recommended eight glasses of water the day before and a fair amount in the morning, my IV's have become easier to put in.  Usually it would take 2-4 sticks.

Are you still drinking soda or energy drinks?  Make a change for a healthier body environment, drink water.  My reasons may not be yours, but you never know when the body becomes acidic.  An environment that accepts disease.  Over time you will feel a difference and perhaps change the course an unhealthy body environment.  Now is the time.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Have You Taken Your Vitamins Today?

As we get older our bodies are constantly changing, adjusting to our diets, medications and daily stress.  I remember as a child my mother making breakfast.  It always included vitamins.  Not understanding the value of vitamins, I simply did what I was told.  It wasn't until I was older and living on my own did taking supplements and vitamins become a choice.

My background does not include being a Nutritionist.  So my diet consisted of processed and takeout foods, Coca-Cola, pizza, pasta, cheese with very little fruits and vegetables.  I didn't take any daily vitamins, thinking the food being consumed had everything I needed.  This certainly is not the case. 

What I have learned this past year is it isn't about what you eat but how you add nutritional value to your diet.  Think of your body as an engine.  It requires fuel, good fuel.  Each item eaten has the usual carbohydrate, protein and fat values, all necessary to keep your engine running.  But, you also need to have vitamins, each one helping the body in some manner regulate as one efficient component. 

Once a vitamin becomes deficient (such as Vitamin D or Calcium) it may compromise the absorption process for strong healthy bones.  Everyone should consider this after age 40 when osteoporosis can set in.  It may also have a domino effect to other organs.  I have been taking a daily women's pack that has a vitamin, calcium magnesium tablet, anti-oxidant and a biotin supplement.  The daily pack comes prepackaged so I do not have to think about which ones I need to take.

Strawberries and fresh cream
 

Having changed my diet from the above to eating healthier choices, more fruit to replace the carbohydrate cravings and a few vegetables, I notice the difference.  Still having trouble with vegetables because I am single living alone and do not like the looks of them.  I don't know why, just do.

Now this was meant to tickle you in some way in regards to your diet and supplements.  There are a lot of good companies providing vitamins in liquid and tablet forms to accommodate everyones needs.  I also recommend taking your vitamins and supplements with a meal or after eating.  It will help absorb more of the nutrients.

I have been with several network marketing companies and take Amway's NutriLite Women's Daily Pack of vitamins.  My bloodwork report shows my nutrient or vitamin levels are well within their range during my recovery process.

So ... Have you taken your vitamins today?  Make the adjustment from eating poorly to eating well and supplement with vitamins to ensure your engine is running properly.  Don't wait until your body becomes sick like I did.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Disclaimer:  I am not a medical professional and any information contained here is an opinion.  Seek advice from a professional. 

Have You Had Your Mammogram Yet?

If someone had told me the full extent of what could happen when you don't get a mammogram, I would have been more compliant with my doctor.  My last mammogram was in 2010.  Like many of us it becomes a scary scenario when the radiologist wants to take another picture.  For me, they took over 8 images of my right breast, putting more skin in the x-ray field.  They didn't see anything and that was the problem.  My previous mammogram had little grains they said to keep watch on. 

Now this mammogram was clear.  Go figure.  The Doctor of radiology came in and said they wanted to take more.  During the conversation it was revealed the center had changed to a digital format.  Since those grains didn't show after the 8th image, I said no more.  The Doctor protested and I asked for an alternative.  Was there an alternative?  Surely the must be something else that doesn't smush your breast like a pancake.

I know many are like me.  Agreeing with those who didn't have a yearly mammogram too.  Yet, I didn't go for the alternatives also.  I am seeing social media more and more offering breast exams and testing, many of them free.  Money should not be an excuse.

Since then I have learned there are several other alternatives to a mammogram, like thermography and sonograms.  They used a sonogram while in the hospital and I saw my lymph node during the pathology testing.  My mother had been diagnosed with Breast Cancer Stage 0 over six years ago.  She had surgery, radiation treatments and placed on Tamoxifen for 5 years.  On stage 0 cancer!  I thought they were covering their a***s on that one. 

But, But, But!!!  There is always a BUT.  It wasn't because I felt invincible or that doesn't happen til my senior years.  I was in denial that would be me, labeled as a Breast Cancer Surviror.  But I am a survivor!  If we could go back in time everyone would change the one thing that would prevent us from change what we know know. 

Unfortunately, I know now why you should not postpone a breast exam.  I have metatastic breast cancer (stage IV) and it is in my bones.  At this point it did not effect any of my major organs.  For someone else this may not be true.  I truly believe the healthy coffee I drink with Ganoderma Lucidum, a reishi mushroom, saved my organs from being touched by these rogue breast cancer cells.

Get a checkup, especially if you have prolonged back pain.  It could be nothing or it could be something.  You don't want the something that takes away your ability to live your life like you want to.  You still have so much to offer, right!  Be Brave, Strong and Fearless!

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

My Weight Loss Came With A Price

By this point you know my mother passed away in 2013.  It was an emotional struggle losing her and someone I long to speak to since.  When I hurt my back in January 2014 I was down 34 pounds and feeling good about it.  It seemed to be easier.  But, as it turned out weeks later I was diagnosed with hormonal Breast Cancer Stage IV.  That is why my back was hurting, it was in my bones.  To be specific, it was in my lower and upper spine, left shoulder, hips and right knee.  I have had radiation treatments in my spine and right knee, with possibility of more in the future.



Me / February 2012

Having been overweight to severely obese in my adult life, I needed to really buckle down and stop overeating for any reason at all.  Such as, celebrating the good and bad, because I wanted to, happy, sad, the list is long.  Eating for me was the only control I had in my life.  I was like anyone else, single living alone and really didn't like to cook.  I liked to bake and good at it.  Eating fast foods, processed foods along with my favorites of pasta and pizza, rarely eating fruits and vegetables.  Wrong carbohydrate cravings galore.  I could eat them everyday. 

Before I was diagnosed with Breast Cancer and at home, I had smaller portions and managed to lose a about 10 more pounds.  Once in the hospital, my diet change helped with my weight loss.  I was put on a schedule with portioned meals, fruit, vegetables and desert.  I thought I was overeating but it jumpstarted the carbohydrate cravings normally felt when starting a diet.  Having failed diet attempts, I gave up long ago from the carb cravings.  I wasn't able to walk while in the hospital, especially on my right leg for fear of breaking it and I was hurting on my left side.  I did all my physical therapy in my bed with leg raises, etc. to maintain some semblance of strength.  When I was released the first time to the skilled nursing and rehabilitation facility, down 56 pounds.

The same occurred through my second hospital stay and hip surgery.  When I entered the skilled nursing and rehabilitation facility in Largo, FL I lost nearly 60 pounds.  My clothes were hanging on me.  Since I had started physical therapy, it added to my weight loss and when released to go home, I was down another 22 pounds.  Since being home, I have a main healthy portion meal and then fruits, nuts or vegetables throughout the day.  I haven't felt a carbohydrate craving they way I used too.  Actually when I have a high concentration of carbohydrates (breads or pasta) in a daily diet I feel cranky and tired.  Go figure!

Me and Adele Brown / February 2015

I am happy to say that I'm now a size 16 pants / 14 top.  I have lost a total of 131 pounds since my mother died and can't believe what I see in the mirror at times.  I have donated half my wardrobe with more remaining in my closet that I can no longer wear.  Cannot believe how much money had been spent throughout the years on clothing that weren't worn or barely used.  Now I shop sparingly for the necessities as I continue on my diet.  I already have my size 14 pants and shorts for the end March.  Hoping my one year anniversary with breast cancer goes on without a hitch.  Keep me in your prayers :)
 
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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

Skilled Nursing ~ Rehabililtation vs. Rehabilitation

At my age I always expected to have an experience with a skilled nursing and rehabilitation facility if one of my parents needed one.  I lost my father in 2004, then my mother in 2013.  Never expecting that I would need a rehab facility, the hospital gave me a long list of them.  Making phone calls to facilities close to me, family and friends, cost was essential.  I would be required to pay out of pocket and 30 days in advance.  Another Ka-Ching!

There is a difference between skilled nursing and rehabilitation facilities and I realize that it must meet your budget.  But I also understand that the environment you place yourself or a loved one is important in recovery and happiness.  Because it was me needing a rehab facility, I couldn't go to inspect the facility.  Fortunate to have my step-father here in Florida at the time, he was great at visiting and bringing me things I needed.  Now I had to rely on his opinion.

General questions to ask when looking for a skilled nursing and rehabilitation facility:

• How many Nurses and Certified Nursing Assistants (CNA's) to # of patients?
• How many residents to a room?
• Is there a TV and phone?  How many TV's?
• Food:  How many options are given and how many substitutions?  Do they accommodate special need meals?  Where are they served?
• How much is physical therapy?  If it is self pay or isn't covered under health insurance.
• What are visiting hours? 
• What activities do you offer?
• Is there security on site?

Being released the first time from the hospital to a skilled nursing and rehabilitation facility in Clearwater, FL, I was truly nervous.  I wasn't able to stand on my own, requiring assistance in every aspect, scared to say the least.  At first, I arrived and was required to be weighed.  I was severely obese and had lost about 20+ pounds while in the hospital.  I needed to be placed in a wheelchair.  It was the first time, I had been transported there by a stretcher and I was anxious about how they would handle me.  Initially, the CNA's that afternoon were cautious with me.  It was over time that I felt my care was in question. 

Meals were served in the dining room or in your bed.  A menu was provided so you could choose, lunch and dinner.  You had the choice of two options and your substitutes were a grilled cheese or another sandwich.  I was there for a week and in that time, I had 3 grilled cheese sandwiches.  One night for dinner, corned beef has was served.  Not my cup of tea!  Plus I had a salad with my meals and they only served ranch dressing.  I was advised that if I wanted Italian dressing, I could purchase a bottle and place it into a refrigerator (that I would have to purchase also). 

My roommate was a senior who couldn't hear and kept to herself.  The room had 1 TV for the both of us and lacked decor.  Fortunately, she spent her time up and around through the day and I was bedridden.  I had control of the TV, yippee!  My nurses were great, coming in to give me my medication.  It was a time when I started refusing some of the medication the hospital had me on.  Because I had pain, on morphine, steroids and more.  I had been diligent with being alert so decisions were made without cloudiness. 

Some of my CNA's were great, but there were a few that handled me roughly, uncaringly.  One afternoon, two put me in the bed, then I said wait a minute.  They walked out and left me there, I was weak and couldn't get myself correctly in bed and still needed help.  I could see how skilled nursing and rehabilitation facilities get a bad reputation.  These two instances, food and care is where I believe cost should be key in deciding a facility.  It was later discovered by the physical therapist that I had an acute fracture in my left hip and they couldn't work with me.  I was sent back to the hospital.  Thankfully, I would not return there.

Once at the hospital and second stay without health insurance.  I was advised I needed a hip replacement.  This was my first surgery requiring me to go under the knife.  It wouldn't be long before I was released and had to choose again a skilled nursing and rehabilitation facility.  Luckily, I kept my notes on them from my last hospital stay.  The facility I liked best was financially out of my reach before, but my HMO health insurance would go into effect soon and was one of their facility choices.  The Largo, FL facility ended up being the right place for me.  Menus offered a variety to choose including alternates.  Yes, they had Italian dressing as well as others.  The staff was pleasant and caring, never being handled roughly and the physical therapy was great.  Their décor pleasant and comfortable, each resident had their own TV too.

The difference in cost between the two skilled nursing and rehabilitation facilities was $135 per day/room & board.  I truly believe that a person's happiness is important in their recovery.  It is simple, but décor, location and meal selection is imperative for any individual.  I spent 54 days in the Largo, FL facility.  I felt happy and cared for even during the days I couldn't wait to get out and go home.

Again, it all depends on your budget when considering short or long term skilled nursing and rehabilitation care.  I also recommend getting an insurance policy while young and healthy.  You never know what life puts in front of you.

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I have setup a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

My Experience With An HMO

Once in the hospital I needed to sign up for ObamaCare and based on the information provided I was eligible for a bronze level HMO.  It would not be active until 4 weeks later.  I was released from the hospital again after my hip replacement surgery into a rehabilitation facility.  The HMO required that I pay the deductible up front.  The deductible was $6,300 and placed on a credit card.  Oh boy!!!

I knew I was in a good facility.  After being evaluated by the Occupational & Physical Therapist, I stood for the first time before entering the hospital.  What a great feeling, I had lost hope that I would be able to walk again.  I began my physical therapy and gained some strength.  The HMO required weekly updates and by my second week they were ready to release me.  They felt I wasn't progressing fast enough.  I was weak and so disappointed with the HMO.  How can you release someone who isn't able to take care of themselves.  The HMO did not have my whole story, only that I had a hip replacement. 

During this timeframe my facility doctor had weekly blood draws and it became a concern that my hemoglobin was too low.  I was lightheaded at times while in therapy sessions lately and it was decided I needed to go back to the hospital for another blood transfusion.  I had lost a lot of blood during the hip surgery, along with my immune system being compromised from breast cancer.  After the transfusion, I returned to the rehabilitation facility 2 days later.

After spending a total of 54 days in rehab, I was walking with a walker and able to get to the toilet on my own.  This is where HMO's have some deficiencies.  Once released, I was brought home by a friend who luckily had a walker and commode that sat above the toilet.  My HMO doctor had received my documentation along with the home equipment list needed.  My equipment listed a wheelchair, commode, home healthcare and physical therapy.

It took three weeks to get a wheelchair and I was only eligible for physical therapy.  The commode was considered portable and the HMO would only provide one transport equipment.  Thank goodness for my friends equipment.  I had been in contact with the HMO, the doctors office and the referral department daily, weekly.  It seemed the doctors office kept losing my orders.  The constant waiting for everything, such as equipment, radiation treatments became more frustrating with each request.

In my lifetime working for different companies, I had been exposed to different health insurance policies including HMO's and PPO's.  I never experienced this with a PPO.  There are a lot of individuals who praise the HMO system, but I would not want to be sick while on their health insurance plan.  I changed my plan to a PPO during open enrollment with ObamaCare and qualified for a gold PPO plan costing less than the HMO.  Go figure!!!

Share your experience with your health insurance plan, good or bad.  It may help another make a better decision in their healthcare.

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I have a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

My Medications ... Oh Boy!

I had lost my mother the summer before and didn't have the guidance she would always provide.  I was on my own.  My friends have been a great support system when needed, but I am making major decisions on the fly since the hospitals.  I do my research as well.

I depend on my healthcare professionals to provide the best options for my course of treatment.  Taking Tamoxifen twice daily, plus Zometa treatments monthly to help strengthen my bones and just recently Falsodex (another anti-hormonal drug).  I can remember speaking to an American Cancer Society representative and asked about Zometa.  He gave me a long list of side effects.  I was in for monthly blood draws one week to keep an eye on my kidneys, plus IV infusions the next week.  Blood draws are difficult for me because my veins seem to hide and are deep, sometimes requiring multiple sticks.

Generally, after receiving my Zometa treatment, it drains me for a few days.  But my last treatment along with Falsodex (injections to right and left hips) left me hurting in my hips greater than usual.  I think the doctor hit my bone or possibly a nerve, limiting my ability to walk.  It took a week for me to feel my usual self.

I am walking with a cane these days for short distances and looking forward to warmer pool weather here in Florida for water exercises.  At the turn of 2015, it's a new health insurance year with ObamaCare.   Changing from an HMO to a PPO is the best thing I did for my healthcare.  Thankful that pre-existing conditions were eliminated, I know have an affordable plan.  It is certainly better than not having insurance, learned that the hard way.

March will be my 1st year anniversary of breast cancer and on Tamoxifen.  I still feel the lump in my right breast and will be going for a mammogram.  My Oncologist is suggesting possible radiation treatments based on my results.

I have a GoFundMe page for donations to help with my medical bills.  Your generosity is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)

The First Day of The Rest of My Life!

A challenge to say the least!  It's a road one must travel step by step to recovery.  It's never perfect, obstacles everywhere, each day.  Emotional, physical and spiritual awareness questioned daily.

My breast cancer journey started January 2014.  I had just attended an event for my coffee business and came home with back pains.  It was something I thought was about getting older.  My mother had back problems so it was only natural to think that was my course at age 52.  So after time and trying to fix myself I became physically weak and scared.  Made a doctors appointment, had an MRI a week later for my back and right knee and that's the day I learned it was cancer.

Confirmed later at the hospital with pathology reports and with no health insurance.  Each time the five+ different doctors came in to discuss my prognosis, all I could hear in my brain was Ka Ching.  You truly can't afford not to have health insurance in the USA.  After 2 separate stays including a hip replacement for a fractured hip, I had accrued over $225,000 in medical bills. OMG!!!

I have Hormonal Breast Cancer Stage IV with no markers in my blood.  The Oncology doctor with the hospital said it was the best one to have and had only metastasized to my bones and not to any major organs.  (Thanks to Ganoderma Lucidum / Reishi Mushroom).  He said his case team was puzzled by that.  It's not terminal, he said, you could be hit by a bus before this gets you.  Really!!!  It was treatable with Tamoxifen and be on it for the rest of my life. 

It has been a challenging road since the beginning of last year.  I am able to walk short distances with a cane.  I've also lost 130 pounds too, now a size 16.  Going through all the phases of denial and acceptance about life.  My personal pity party (PPP) ended last month with thoughts in the direction of health improvement, happiness and writing my journey with you and for you.  Over the next few months, I will be posting about my progress, weight loss, recipes, supplements or anything interesting.

I have a GoFundMe page for donations to help with my medical bills.  Your generosity to help is humbling and appreciated.

Be genuine, share yourself and have a fabulous day!  Susan (aka SuzzzyGal)